What to Expect
A member of the CCW team consults with the physicians overseeing your child’s care and then meets with you to gain a clearer understanding of your family and child’s strengths and needs.
Next, our team assembles a list of those integrative and supportive therapies that can help alleviate your child’s symptoms and promote general wellbeing. We offer these same services to parents and other family members to assist in the transition to medical treatment and to keep everyone as healthy as possible.
You will learn about the benefits of acupuncture, massage, Reiki and aromatherapy, as well as movement, exercise and nutritional counseling—all offered free of charge, thanks to generous donations.
Our psychosocial team may provide individual and family counseling to assist you and your child with the challenges of coping with a medical illness and treatment.
With age appropriate education, our child-life specialists help explain medical diagnoses and procedures. They have also designed fun and therapeutic activities for your child and siblings both in the clinic and in the hospital.
Our social work team is also on hand to provide supportive counseling, as well as assist you with any concerns you may have about insurance coverage, travel and lodging, additional caretaking or help with finances.
What happens during therapy?
In our weekly CCW staff meeting we discuss integrative and supportive therapies that can help children with cancer and blood disorders cope with the effects of treatment, including chemotherapy, radiation, and stem cell transplantation.
Members of the CCW team continue to closely monitor treatment related symptoms like pain, nausea, vomiting, fatigue, anxiety, depression, etc. and offer medical, psychological and integrative therapies to address them. Our program is unique because it is comprehensive, combining a variety of treatment modalities under one roof. It is also only one in the nation with a Family Nurse Practitioner specializing in symptom management to keep our patients as comfortable as possible.
What happens after treatment?
Our Survivor Wellness Program follows patients beginning two to four years after the completion of therapy. It continues to do so for as long as needed, as their lives evolve.
When treatment ends, each patient receives a medical summary outlining where and where they received treatment, what type of chemotherapy and/or radiation was provided, and any side effects or long-term complications. This summary highlights any ongoing medical issues and becomes the basis for a long-term surveillance plan.
In the follow up period, a patient might have lab tests to screen for secondary blood malignancies, an echocardiogram to check for heart disease, and a DEXA scan to assess bone density, depending upon their degree of radiation exposure.
Our CCW team may prescribe acupuncture and massage for post-treatment ailments like constipation and headaches.
We will also meet with the patient and family members to assess the level of psychological, educational and nutritional support required from this point forward to help everyone successfully make the transition to survivorship.